Spina Bifida Patient Alliance
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Spina Bifida Patient Alliance
Home
Who We Are
Donations
Board of Directors
Resources
Privacy policy
More
  • Home
  • Who We Are
  • Donations
  • Board of Directors
  • Resources
  • Privacy policy
  • Home
  • Who We Are
  • Donations
  • Board of Directors
  • Resources
  • Privacy policy

Join Spina Bifida Patient Alliance in Making a Difference

Spina Bifida Patient Alliance - Supporting Education

Many struggle with the debilitating effects of Spina Bifida as they age.  There are alternative therapies that may help manage pain, and promote some healing, allowing us to stay active and not "lose" any of our abilities.  These therapies include Physical Therapy, Massage Therapy and Acupuncture in addition to traditional pain management therapy.  The goal is that every person with SB that is capable of living a productive life in society should be encouraged and supported to do so.  Too many with Spina Bifida have been told that they will never work, and won't ever need that higher education, so they fall into the black hole of forced poverty. It is an ugly and demeaning cycle that does not age well and keeps those with SB away from productive relationships, marriage, children, careers, it's just really sad

Donate Today

Your donation can make a difference in the lives of individuals with Spina Bifida.

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Links to resources

The Chanda Center For Health

Develop a Program for the Care of Adults in Your City - Karen Cushnyr

The Christopher and Dana Reeve Foundation

The Chanda Center for Health’s mission is to deliver, advocate & educate for integrative therapy and other complementary services to reduce health disparities and costs by improving health equity and outcomes for individuals with physical disabilities through the support of donors, grants, special events and community partners.

Visit Site

The Christopher and Dana Reeve Foundation

Develop a Program for the Care of Adults in Your City - Karen Cushnyr

The Christopher and Dana Reeve Foundation

 This orginization is dedicated to curing spinal cord injury by advancing innovative research and improving the quality of life for individuals and families impacted by paralysis

Visit Site

Develop a Program for the Care of Adults in Your City - Karen Cushnyr

Develop a Program for the Care of Adults in Your City - Karen Cushnyr

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

Develop a Program for the Care of Adults in Your City - Karen Cushnyr

Watch video

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

Read Op Ed

AAHD

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

What is Spina Bifida

The American Association on Health and Disability is hosting a series of live interviews with disability community members to learn how they make the most of their private or public insurance coverage. Join AAHD once again for a candid conversation on getting the most out of your #healthcare coverage! This week's topic? Access to specialists, such as a focus on a specific area of medicine to address more than primary care. Our guest this week is Karen Cushnyr, proud to be a part of the Spina Bifida community, working to improve the lives of all living with SB and has worked for over 25 years in healthcare, primarily as a Healthcare Administrator.

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What is Spina Bifida

Op-Ed: It Doesn’t Matter What People Call Me: Let’s Fight for What Really Matters

What is Spina Bifida

Spina bifida is a birth disorder that involves the incomplete development of the spine. In the first month of pregnancy, a special set of cells forms the “neural tube;” the top of the tube becomes the brain, and the remainder becomes the spinal cord and structures around it. In spina bifida, the neural tube doesn’t close completely and some of the bones of the spine do not close in the back. This can result in an opening anywhere along the spine and may cause damage to the spinal cord and nerves

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Have a question or want to get in touch? We'd love to hear from you. Contact us today and we'll get back to you as soon as possible.

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