About Spina Bifida Patient Alliance

The Spina Bifida Patient Alliance is a nonprofit organization dedicated to the support of all patients with spina bifida. We are an information resource for patients and their families, a storehouse of knowledge

and experiences from spina bifida patients, a provider of guidance and advice about living with spina bifida, a directory of spina bifida care, and a provider of resources for spina bifida patients. We seek to improve the lives of the patients with spina bifida and their families through knowledge, encouragement, compassion, and encouragement for navigating through life with spina bifida.

Our vision is to be a continually evolving friendly space for patients with Spina Bifida and their families, from diagnosis day to old age.   We strive to provide an expanding portfolio of physical, professional and supportive resources to our community of patients. We endeavor to help an ever-enlarging cohort of people improve their lives by assisting them with access to every avenue of care including traditional medicine, physical therapy, massage therapy and alternative therapies. We seek to use the tools of multiple social spaces to foster shared knowledge, promote strength, and disseminate knowledge. It is our commitment to emphatically spread the message that no one should be held back by the diagnosis of spina bifida.